Click here to close now.

Welcome!

Wireless Authors: Pat Romanski, Liz McMillan, Lori MacVittie, Esmeralda Swartz, Elizabeth White

Related Topics: Cloud Expo

Cloud Expo: Blog Feed Post

One Year and Counting...

A blog post to mark the 365th day of survival since being operated on for pancreatic cancer

It isn't very often - no, wait, it is completely unique, having never happened before - that I write to each and every one of my LinkedIn contacts simultaneously. But as the proverb goes, "circumstances alter cases."

The "circumstance" that causes me to risk Web-wide ire at my misuse and abuse of Reid Hoffman's gallantly unspoiled business tool is the arrival of the 365th day of survival since being operated on for pancreatic cancer. One entire year! Never has a year taken so long, never have 365 days seemed more like 1,365. But a year it is, and given the givens it deserves to be marked in some way. This is my way.

Worry not, I am not going to hit you up for money. (Even though the Pancreatic Cancer Action Network could most certainly always use it.) I am not even going to hit you up for emotion.

Nope. Far worse than that, I am going to hit you up - briefly - for attention. Because, to be brutally blunt, it isn't at all clear what kind of timeline anyone lives on once pancreatic cancer rears its ugly head; and so my resolution today is to make hay while I can - or, as the Hindus apparently put it, to turn the mill while there is still sugarcane.


The chances are that you will know someone who has been diagnosed with cancer, perhaps even with pancreatic cancer. If so then, like my wife and children the day I was diagnosed in a hospital in faraway Sarajevo (pictured below), you probably headed straight to Google...and were startled by what you found.

Koševo Hospital, the university hospital of Sarajevo in Bosnia

Few diseases, I suspect, return search results quite as gloomy as pancreatic cancer. A typical one is as follows:

Pancreatic cancer has a dismal survival rate...


or this

overall survival is dismal - 20 percent after one year and only 4 percent after five years


I mean, I am no statistician, and neither were any of my four kids, but these "survival rate" stats read, back then, less like a glimpse of hope and more like a death sentence.

But then when the heck did anyone ever rely on statistics, right? Besides, what matters is how early the tumor is found (earlier = smaller = better), whether it is deemed to be operable, and how well the surgery goes. There don't seem to be any stats for those lucky enough to have undergone a Whipple operation - the life-saving, if radical, surgical procedure that, 365 days ago today, was how I spent my morning.

I have already written briefly about the experience of being both diagnosed with the deadliest of all the cancers and spared/saved from it all within the space of three weeks. I had a stab, too, at trying to sum up what it is like, after the Whipple, to be prescribed follow-up chemotherapy for seven long months. None of these posts was very well written, but the intent was just to share an experience, in case might help provide some kind of insight either to those who had worse luck than mine, perhaps even to those who fared better in similar circumstances...and most especially to the rest of you who have been lucky enough not to one day, just three months after completing your third New York Marathon, be told completely out of the blue that you've got the deadliest of all the cancers. Remember to say a brief 'thank you' tonight in your prayers!

Here's how it went down 365 days ago in Copenhagen University Hospital (Rigshospitalet), which is where I had the Whipple procedure - in which, as one fellow pancreatic survivor recently put it, "Everything around the pancreas that can be removed, cut, whacked, chopped, is."

Rigshospitalet, the university hospital of Copenhagen in Denmark

Reassured by the fact that around thirty of these operations are performed each year by this same team of surgeons, I remember one year ago today smiling first at my wife, who was right there beside me as they prepped me for the op, then at the anesthetist whose job it was to put me under...and saying a private little prayer in my head, before oblivion took over.

There's something curiously daunting about going to sleep in full possession of your innards, but with the certain prospect of waking up with your inventory of bodily organs severely depleted.

The lion's share of my pancreas, all of my gall bladder, a goodly portion of my stomach, and an assortment of small-intestine-removal later...I did indeed wake up. And what a relief it was to find that 1. I was alive and kicking and 2. that I was in no kind of pain - just "downsized" internally. In fact I was now significantly less complicated under the hood!

Departments of Surgical Gastroenterology are probably not famous for being fun places to hang out, but if you have to for one reason or another - including this Whipple operation, which is one of the most complicated they do - I can certainly recommend the incredible team at Copenhagen's Rigshospital.

Recovery from a Whipple is an especially brutal process because the basic trick is to do it just as fast as humanly possible, getting back onto one's feet almost immediately, even if only to stand up. Other tricks include repeatedly saturating one's system with oxygen via special breathing exercises that have been shown to speed up the post-operative healing process...even though the last thing you instinctively want to do, when your midriff has been more or less sliced into two, is to breathe deeply. (Trust me on this!)

365 Days Ago Today - midriff complete with mid-rift!

Whipple patients typically lose 10% of their body weight in the pre- and post-operative period. It has taken an entire year to put even half of that back on! You might think that it every teenage schoolgirl's dream, but I am no teenage schoolgirl and I can tell you, nothing is stranger than finding that none of the things you ate before are going to help you put weight back on...and that instead you have to become a fat-chaser, a scavenger on the lookout for calories wherever you can find them.

I failed miserably, for at least the first three months. Putting butter on my bread, ignoring most vegetables as having insufficient protein for the amount of room they took up in my tummy, these sorts of changes seem simple - but they are not! I adore, sorry past tense, I adored, salads. But lettuce leaves and spinach leaves and suchlike are a thing of the past, once the part of the pancreas that produces enzymes is tossed into the surgical waste-bin. Because there's nothing to help digest them...which means basically that they get stuck, and it is excruciatingly painful as well as deeply frustrating.

The pancreas is of course where your insulin is manufactured too. The after-effects of Whipple surgery differ according to how much or how little of the pancreas is left by the surgeons, but in my case all I can say is, though incredibly lucky to be left with at least a bit of it, the process of eating say an orange or a banana seems to have been undermined forever. (Guess what my two absolute favorite fruits were? I guess one should never take ANYTHING for granted. I wonder how many bananas and oranges I scoffed over the years without ever really giving it a thought; whereas now, those two tastes are almost foreign to me, I can hardly remember either of them.)

Worries over dietary changes and internal rearrangements were pushed firmly onto the back burner the day, on the very point of leaving hospital and being declared a resounding success from a surgical point of view, I was told that seven months of chemotherapy was going to be needed too. Belt and suspenders. Pancreatic cancer is like the worst kind of serial killer, and no one was intending for me to take any chances.

So I had survived the disease. Now all I needed was to survive the cure!

As I say, I already wrote about what it's like, after the Whipple, to be prescribed follow-up chemotherapy for seven long months. That was at the mid-way point. Since my 189 days of chemo ended, my overall health seems from the outside enviable - and probably is, at least to almost everyone but me, who feels it has been disappointingly slow, unexpectedly erratic, and very little different from during chemo itself. Energy levels remain fluctuating rather than steady, sleep patterns likewise, and concentration is a word that seems almost to have tumbled out of my dictionary for good.

The ugly question naturally reared itself: if the Whipple surgery went so well (and it did, the surgeons were 100% adamant about that), why wasn't I by now back to Marathon form, both professionally and personally? And the answer will come shortly...courtesy of the bloodwork and the scanning techniques that Rigshospital once again is bringing to bear on this onetime athlete's body of mine. Cross your fingers; certainly I am crossing mine on this anniversary of anniversaries. One thing is sure: it isn't for want of trying - I have been trying once more to use running as my health barometer, and really have tried again and again and again to get back my running Mojo - just as, professionally, I have sought to regain my Cloud Mojo.

But it appears that convalescence is not only a question of mind over matter. Sometimes one needs "a little help from one's friends" - including, in this case, from Copenhagen University Hospital's brilliant oncologists - who understand the nuances of X-ray computed tomography!

Once they've advised me how best to proceed from here, I shall let you know (more succinctly next time, I promise!) how the future trajectory is looking. Hopefully the current little setback will be put into context and the overall prognosis will turn out to be simply Cloudtastic ;-)

Read the original blog entry...

More Stories By Jeremy Geelan

Jeremy Geelan is Chairman & CEO of the 21st Century Internet Group, Inc. and an Executive Academy Member of the International Academy of Digital Arts & Sciences. Formerly he was President & COO at Cloud Expo, Inc. and Conference Chair of the worldwide Cloud Expo series. He appears regularly at conferences and trade shows, speaking to technology audiences across six continents. You can follow him on twitter: @jg21.

Comments (0)

Share your thoughts on this story.

Add your comment
You must be signed in to add a comment. Sign-in | Register

In accordance with our Comment Policy, we encourage comments that are on topic, relevant and to-the-point. We will remove comments that include profanity, personal attacks, racial slurs, threats of violence, or other inappropriate material that violates our Terms and Conditions, and will block users who make repeated violations. We ask all readers to expect diversity of opinion and to treat one another with dignity and respect.


@ThingsExpo Stories
Temasys has announced senior management additions to its team. Joining are David Holloway as Vice President of Commercial and Nadine Yap as Vice President of Product. Over the past 12 months Temasys has doubled in size as it adds new customers and expands the development of its Skylink platform. Skylink leads the charge to move WebRTC, traditionally seen as a desktop, browser based technology, to become a ubiquitous web communications technology on web and mobile, as well as Internet of Things compatible devices.
SYS-CON Events announced today that robomq.io will exhibit at SYS-CON's @ThingsExpo, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. robomq.io is an interoperable and composable platform that connects any device to any application. It helps systems integrators and the solution providers build new and innovative products and service for industries requiring monitoring or intelligence from devices and sensors.
The WebRTC Summit 2014 New York, to be held June 9-11, 2015, at the Javits Center in New York, NY, announces that its Call for Papers is open. Topics include all aspects of improving IT delivery by eliminating waste through automated business models leveraging cloud technologies. WebRTC Summit is co-located with 16th International Cloud Expo, @ThingsExpo, Big Data Expo, and DevOps Summit.
Docker is an excellent platform for organizations interested in running microservices. It offers portability and consistency between development and production environments, quick provisioning times, and a simple way to isolate services. In his session at DevOps Summit at 16th Cloud Expo, Shannon Williams, co-founder of Rancher Labs, will walk through these and other benefits of using Docker to run microservices, and provide an overview of RancherOS, a minimalist distribution of Linux designed expressly to run Docker. He will also discuss Rancher, an orchestration and service discovery platf...
Wearable technology was dominant at this year’s International Consumer Electronics Show (CES) , and MWC was no exception to this trend. New versions of favorites, such as the Samsung Gear (three new products were released: the Gear 2, the Gear 2 Neo and the Gear Fit), shared the limelight with new wearables like Pebble Time Steel (the new premium version of the company’s previously released smartwatch) and the LG Watch Urbane. The most dramatic difference at MWC was an emphasis on presenting wearables as fashion accessories and moving away from the original clunky technology associated with t...
SYS-CON Events announced today that Vitria Technology, Inc. will exhibit at SYS-CON’s @ThingsExpo, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. Vitria will showcase the company’s new IoT Analytics Platform through live demonstrations at booth #330. Vitria’s IoT Analytics Platform, fully integrated and powered by an operational intelligence engine, enables customers to rapidly build and operationalize advanced analytics to deliver timely business outcomes for use cases across the industrial, enterprise, and consumer segments.
SYS-CON Events announced today that Solgenia will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY, and the 17th International Cloud Expo®, which will take place on November 3–5, 2015, at the Santa Clara Convention Center in Santa Clara, CA. Solgenia is the global market leader in Cloud Collaboration and Cloud Infrastructure software solutions. Designed to “Bridge the Gap” between Personal and Professional Social, Mobile and Cloud user experiences, our solutions help large and medium-sized organizations dr...
SYS-CON Events announced today that Liaison Technologies, a leading provider of data management and integration cloud services and solutions, has been named "Silver Sponsor" of SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York, NY. Liaison Technologies is a recognized market leader in providing cloud-enabled data integration and data management solutions to break down complex information barriers, enabling enterprises to make smarter decisions, faster.
@ThingsExpo has been named the Top 5 Most Influential M2M Brand by Onalytica in the ‘Machine to Machine: Top 100 Influencers and Brands.' Onalytica analyzed the online debate on M2M by looking at over 85,000 tweets to provide the most influential individuals and brands that drive the discussion. According to Onalytica the "analysis showed a very engaged community with a lot of interactive tweets. The M2M discussion seems to be more fragmented and driven by some of the major brands present in the M2M space. This really allows some room for influential individuals to create more high value inter...
After making a doctor’s appointment via your mobile device, you receive a calendar invite. The day of your appointment, you get a reminder with the doctor’s location and contact information. As you enter the doctor’s exam room, the medical team is equipped with the latest tablet containing your medical history – he or she makes real time updates to your medical file. At the end of your visit, you receive an electronic prescription to your preferred pharmacy and can schedule your next appointment.
The world's leading Cloud event, Cloud Expo has launched Microservices Journal on the SYS-CON.com portal, featuring over 19,000 original articles, news stories, features, and blog entries. DevOps Journal is focused on this critical enterprise IT topic in the world of cloud computing. Microservices Journal offers top articles, news stories, and blog posts from the world's well-known experts and guarantees better exposure for its authors than any other publication. Follow new article posts on Twitter at @MicroservicesE
The list of ‘new paradigm’ technologies that now surrounds us appears to be at an all time high. From cloud computing and Big Data analytics to Bring Your Own Device (BYOD) and the Internet of Things (IoT), today we have to deal with what the industry likes to call ‘paradigm shifts’ at every level of IT. This is disruption; of course, we understand that – change is almost always disruptive.
SYS-CON Events announced today the IoT Bootcamp – Jumpstart Your IoT Strategy, being held June 9–10, 2015, in conjunction with 16th Cloud Expo and Internet of @ThingsExpo at the Javits Center in New York City. This is your chance to jumpstart your IoT strategy. Combined with real-world scenarios and use cases, the IoT Bootcamp is not just based on presentations but includes hands-on demos and walkthroughs. We will introduce you to a variety of Do-It-Yourself IoT platforms including Arduino, Raspberry Pi, BeagleBone, Spark and Intel Edison. You will also get an overview of cloud technologies s...
SYS-CON Events announced today that SafeLogic has been named “Bag Sponsor” of SYS-CON's 16th International Cloud Expo® New York, which will take place June 9-11, 2015, at the Javits Center in New York City, NY. SafeLogic provides security products for applications in mobile and server/appliance environments. SafeLogic’s flagship product CryptoComply is a FIPS 140-2 validated cryptographic engine designed to secure data on servers, workstations, appliances, mobile devices, and in the Cloud.
SOA Software has changed its name to Akana. With roots in Web Services and SOA Governance, Akana has established itself as a leader in API Management and is expanding into cloud integration as an alternative to the traditional heavyweight enterprise service bus (ESB). The company recently announced that it achieved more than 90% year-over-year growth. As Akana, the company now addresses the evolution and diversification of SOA, unifying security, management, and DevOps across SOA, APIs, microservices, and more.
GENBAND has announced that SageNet is leveraging the Nuvia platform to deliver Unified Communications as a Service (UCaaS) to its large base of retail and enterprise customers. Nuvia’s cloud-based solution provides SageNet’s customers with a full suite of business communications and collaboration tools. Two large national SageNet retail customers have recently signed up to deploy the Nuvia platform and the company will continue to sell the service to new and existing customers. Nuvia’s capabilities include HD voice, video, multimedia messaging, mobility, conferencing, Web collaboration, deskt...
SYS-CON Media announced today that @WebRTCSummit Blog, the largest WebRTC resource in the world, has been launched. @WebRTCSummit Blog offers top articles, news stories, and blog posts from the world's well-known experts and guarantees better exposure for its authors than any other publication. @WebRTCSummit Blog can be bookmarked ▸ Here @WebRTCSummit conference site can be bookmarked ▸ Here
SYS-CON Events announced today that Cisco, the worldwide leader in IT that transforms how people connect, communicate and collaborate, has been named “Gold Sponsor” of SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. Cisco makes amazing things happen by connecting the unconnected. Cisco has shaped the future of the Internet by becoming the worldwide leader in transforming how people connect, communicate and collaborate. Cisco and our partners are building the platform for the Internet of Everything by connecting the...
SYS-CON Events announced today that Akana, formerly SOA Software, has been named “Bronze Sponsor” of SYS-CON's 16th International Cloud Expo® New York, which will take place June 9-11, 2015, at the Javits Center in New York City, NY. Akana’s comprehensive suite of API Management, API Security, Integrated SOA Governance, and Cloud Integration solutions helps businesses accelerate digital transformation by securely extending their reach across multiple channels – mobile, cloud and Internet of Things. Akana enables enterprises to share data as APIs, connect and integrate applications, drive part...
Cloud is not a commodity. And no matter what you call it, computing doesn’t come out of the sky. It comes from physical hardware inside brick and mortar facilities connected by hundreds of miles of networking cable. And no two clouds are built the same way. SoftLayer gives you the highest performing cloud infrastructure available. One platform that takes data centers around the world that are full of the widest range of cloud computing options, and then integrates and automates everything. Join SoftLayer on June 9 at 16th Cloud Expo to learn about IBM Cloud's SoftLayer platform, explore se...